Current Updates

March 13th, 2018
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  • Movie of Patient Groups in Japan
January 15th,2018
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December 26th, 2017
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December 15th, 2017
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December 8th, 2017
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September 28th, 2017
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  • Orange Newsletter No.41
July 20th, 2017
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July 10th, 2017
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  • Orange Newsletter No.40
April 21st, 2017
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April 11th, 2017
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  • Orange Newsletter No.39
Jan 31st, 2017
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  • Orange Newsletter No.38
Dec 1st, 2016
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Oct 27th, 2016
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Jun 14th, 2016
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May 27th, 2016
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Apr 26th, 2016
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March 17th, 2016
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March 11th, 2016
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Dec 25th, 2015
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  • Commemorative newsletters

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Dec 9th, 2015
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Dec 4th, 2015
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Aug 18th, 2015
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    July 22th, 2015
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    • Orange Newsletter No.28
    May 25th, 2015
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    • Orange Newsletter No.27
    • Actual Condition Survey Report of NANBYO Patients’ Working Situation
    Apr. 1, 2015
    Uploaded the new movie of "Patient Groups in Japan"
    Jan 29th, 2015
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    • Newsletter No.11 of NPO ‘NANBYO’ Support Network Hokkaido
    • Newsletter No.11-19, and a Special Number of Society of NANBYO Centers

About this Website

This project was started in 2007.
It is being produced by the Japan Patients Association (JPA) and “NANBYO” Support Network Hokkaido.
In 2013, it became a target project for subsidies from the Ministry of Health, Labour and Welfare.
It is being implemented as a support project for the patients with intractable diseases, called the “Patient Groups in Japan Information Collection Project”.
It is our goal to pass on the records of the patients with intractable diseases and their families to future generations.

Chronological Table

The “Chronological Table” section summarizes the activities carried out by Patient Groups and the society.

Interviews

The “Interviews” section collects interviews with the leaders from the times at which Patient Groups were established.

Movie of Patient Groups in Japan


List of Patient Groups


Link

Editor