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This project was started in 2007.
It is being produced by the Japan Patients Association (JPA) and “NANBYO” Support Network Hokkaido.
In 2013, it became a target project for subsidies from the Ministry of Health, Labour and Welfare.
It is being implemented as a support project for the patients with intractable diseases, called the “Patient Groups in Japan Information Collection Project”.
It is our goal to pass on the records of the patients with intractable diseases and their families to future generations.
The “Chronological Table” section summarizes the activities carried out by Patient Groups and the society.
The “Interviews” section collects interviews with the leaders from the times at which Patient Groups were established.
Movie of Patient Groups in Japan
Nanbyo Support Network Japan
1-28, South 27, West 8, Chuo-ku, Sapporo Hokkaido 064-0927, Japan
TEL +81-11-532-2360 FAX: +81-11-511-8935
Japan Patients Association (JPA)
Iidabashi Hightown 610 Shimomiyabi-cho2-28 Shinjuku-ku Tokyo, 162-0822, Japan
TEL +81-36280-7734 FAX +81-36280-7735
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